Fighting for a cure for Angelman syndrome- for Emma and children like her
Emma’s Wish Foundation supports research, awareness and hope for families impacted by Angelman syndrome.
Together let’s Light the Night
Friday, September 18, 2026
6:00pm
Shackamaxon Country Club
100 Tillinghast Turn, Scotch Plains, NJ 07076
Sponsorship opportunities available NOW!!!
Thank you to our generous sponsors
A message from Mike & Ashley
On May 2, 2024 our daughter Emma was diagnosed with Angelman syndrome. Those first few weeks were heartbreaking. While grieving the life we had hoped for Emma, we promised that Angelman syndrome would not define her. We will do anything and everything to give her the best life possible.
Like most rare diseases, there is currently no treatment or cure for Angelman syndrome. But there is reason for hope—there is a robust pipeline of promising therapeutics, including two in phase 3 clinical trials, and several others in early clinical development. Meaningful treatment options would be life-changing for our family and for so many families like ours.
Emma’s Wish was formed to fight for Emma and others living with Angelman syndrome and other rare diseases. We are committed to our community to raise awareness and funds to support research for a cure.
This is where we need YOUR help! We cannot do this alone. It truly takes a village and we would be so grateful for any support you can offer. Together, we can hold onto hope, and strive for a brighter future.
All our love,
Mike & Ashley, proud parents to Isabella, Michael, Emma and Matthew
What is Angelman syndrome?
Angelman syndrome is a rare neurogenetic disorder caused by the disruption of the UBE3A gene, which encodes a critical protein people need to communicate, move, and learn. People living with Angelman syndrome suffer from severe developmental delays, mobility issues, difficulty sleeping, and seizures.